Keely Louise Hill was born on December 14, 2009. On May 27th, 2010 Keely was diagnosed with Spinal Muscular Atrophy Type 1, a terminal, degenerative neuromuscular disease with no cure and only hope! On June 30th 2011 at 18 months & 16 days old Keely became an angel and flew free of SMA. Our hearts are broken and only memories remain. Her beautiful spirit had an impact on the lives of so many. This blog is dediated to her beautiful life & the impact she has made on myself as her mommy.
Keely Louise
Her Beautiful Eyes ~ The Windows Of Her Soul
Tuesday, December 14, 2010
"Happy 1st Birthday Keely Louise!!!!"
How exciting is today! I started by not being able to fall asleep lastnight because I was excited for today. I woke up through the night about 5 times to check the clock because I was so excited for morning to come, I couldnt wait for the morning to get started so i could see your smiling ONE YEAR OLD face by looking into your crib and telling you Happy Birthday!! Me and Daddy started by turning on CHCH TV to see your happy birthday wish. Shaely and Jordan were excited to see you on TV again! i kept going in your room and checking on you because I couldnt wait for you to wake up. We got all kinds of text messages from your aunties and friends and Grandma Louise called to wish you Happy Birthday. While we were talking you woke up and had immediate smiles! As I stood over your crib and sang with a smiling face "Happy Birthday to you, Happy Birthday to you, Happy Birthday to my Keely Girl, Happy Birthday to you!...and many more!" You had the biggest smile and the happiest face. I started to cry immediately after but I was smiling while i was crying. I wasnt crying because I was sad it was because I was so happy that you are here for me to sing that song to you! I was crying and smiling looking at your face and you were smiling back at me. I said to you "Mommy's happy Keely, Im not sad you can cry when your happy too and I am happy that you are here for your birthday!" I just felt this sense of beign so thankful and i felt like so many prayers have been answered. I picked her up out of her crib and sang it to her many more times and she had a permanent smile everytime. Anyone that knows Keely knows that her expressions say a million words. She looked at me to say "Its my birthday you got your wish Mommy". I spun her around until we got to the living room and then I recorded her on the video camera and sang happy birthday again! I sang it twice and she just wanted her best friend (her soother) so I gave it to her and she was excited but didnt have the same big smiles the first 10 times I sang it. So I said "Smile if you want mommy to stop singing" and so she gave me a smile and I stopped :). A few days after we had received the results from her testing Scott and i were riding in the car and we were talking about everything. I said "I hope that Keely is here to celebrate her birthday" Saying this seemed so far fetched of a wish and I was basically thinking out loud. Scott grabbed my hand and said "That is amazing that you can say that and I am proud of you" and i asked "why do you say that?" he said "you have come a long way and for that to be your wish can be very realistic, you are setting yourself a goal". If anyone has sat in one of the many meetings we have had with doctors, our neurologist and social workers about our daughter you would know that for Keely to make it to her first birthday would seem like a miracle. So simply for me to wish this could have been a long shot. But this little girl of mine is a miracle and her strength and her fight has made reaching her first birthday possible. So here we are on Keely's first birthday starting at 11:24am! I can say that I am the happiest mommy in the world even though alls we have done so far was lounge around in our jammies with daddy and do nothing today. Its the most special day. We had Birthday Lunch from Yins just the 3 of us! Happy Birthday is Keelys new favorite song :). At around 5:30pm a big delivery came all i could see was a whole bunch of flowers, lots of balloons and a gift bag. Keely got beautiful flower arrangements from Dreamcatcher Fund, Auntie Alisha and Auntie Becky, she loves balloons! I couldnt have asked for a better day spent just relaxing and enjoying each other. How fortunate we are to have this little girl enrich our lives this past year and bring so much happiness to all of us. Cant wait for our all family and friends to help us celebrate our little angel turning one tomorrow! We Love You Keely Louise & Thank-You for the best year ever! Love Mommy & Daddy
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