Everyday this little girl gets brighter and brighter. Each and everyday we are greeted with a smile and rarely do we receive complaining coming from Keelys bedroom. Its usually a bunch of babbling and some loud yells letting us know shes awake and come and get me. But before you go into her room dont dare think about walking back out unless you are bringing her with you or she is not happy! Do your hand cleansing, washroom break, whatever it is that may interrupt her morning. I can feel the most tired or sick or just not up to par yet but you walk into Keelys room and the first thing you see are her big beautiful eyes staring at you on both sides of her bipap, as she listens to you walk across the floor into her room. Doesnt take much to get a smile out of her in the mornings and as soon as I take her ventilator off shes babbling up a storm with alot of pretty smiles! After her morning routine I put my hands out to pick her up and wait for her reaction of her eyes rolling (this is what she does when she gets excited) alongside a smile because shes excited for me to pick her up. We walk out of her room singing "The ants go marching one by one horrah horrah!, the ants go marching 1 by 1 horrah horrah, the ants go marching 1 by 1 and the little one stopped to suck his thumb and they all go marching down around the town boom boom boom" and she smiles and giggles and by the time we get to where were going were at about 7...but we stop at 7 and we dont say where the ants go at 7 because were not ready to go there yet!! Anyhow this is the start to our day everyday. Most days its just Keely and i home and Scotts in and out. Then theres some days (during school days of course) its Scott, Keely and I and other than all her other needs we like to spend our time surrounding her and letting her be our entertainer. She doesnt entertain us by sitting, crawling, walking or even clapping because this is something she cannot do and will never be able to (well not that we will ever see). Her intelligence and personality make up for all the things she cannot do physically and is still able to amaze us with different things every single day. Instead of clapping her hands she will pretend shes singing. We make humming noises and she will mock each note and pitch that we do, she attempts to whistle, blow, will mock our breathing patterns and if shes really excited she will let out a big high pitched squeal with her eyes rolling of course. She is so entertaining to me and sometimes I cant believe how smart she is. One of her favorite things to do is talk on the phone and she will talk on the phone! She always does this sound from a very early age where she sounds like a car that wont start! So of course we make the sound and she will instanly copy. If im out of the house my phone will ring and i will say "hello, hello?" and no one answers then after about the fourth hello its all babbling. Sometimes she will last about 10 minutes or gets mad because she cant see me. Its the cutest most sweetest thing to hear her sweet little voice trying to have a conversation with me. Our days together never seem dull, some days a little tiresome just because you get a little worn out with cabin fever but thats to be expected....for me a day with Keely is like a day in paradise! Sometimes i wish our days would slow down because life just goes by so fast. I have made sure I treasure each day and hold onto each new thing that she shows me. My life just feels very special right now. Some may think that this is the brunt of it with all the stress and workload that caring for a child with needs entails but other than being able to change that Keely can be normal and healthy I wouldnt change a thing. I will care for her and put my life on hold for the rest of my life for her if I could. She has brought so much happiness to us and i figure its the least I could do. We had points in our life where we almost lost her so making my life hers and taking care of her needs at home on a daily basis is my pleasure. I never ever feel like I have a special needs child because of all the love that surrounds us. I just dont see anything wrong with the way that she is and to me she is just as perfect as can be! She has enlightened our life so very much and you really learn what the important things in life truly are!
